In 2023, FDA approved 55 novel drugs, but there is an ongoing battle that requires increasing attention. It is the one on  rare diseases, and today we celebrate the annual Rare Disease Day to remind us of its importance.

A pathology is considered rare when it affects 5 people per 10,000 or fewer, but it is estimated that 300 million people worldwide are affected by rare diseases. Over 6000 rare diseases characterized by a wide diversity of symptoms and disorders not only test patients but also their families and caregivers. 72% of these diseases are of genetic origin, while nearly 1 in 5 cancers is considered rare.

Symptoms, sometimes seemingly common, can conceal underlying rare diseases, leading to misdiagnoses and treatment delays. These diseases are mostly disabling, impacting patients' quality of life due to the chronic, progressive, degenerative, and often dangerous aspects of the disease. The fact that effective cures often do not exist adds to the high level of pain and suffering endured by patients and their families.

The long-term goal of the Rare Disease Day campaign is to ensure equitable access to diagnosis, treatment, healthcare, social support, and social opportunities for people affected by a rare disease.

Rare Disease Day is an excellent example of ongoing progress, with events held worldwide every year. Since 2008, events have begun taking place in 18 countries; since then, Rare Disease Day has been observed annually, with activities held in over 100 countries.

Together, we can make difference. But how?

Dompé has chosen to raise awareness about these lesser-known diseases by launching a message of support and awareness.

We have transformed our corporate spaces, hosting a photographic event that featured Dompé employees.

We decided to give voice to words by organizing an internal photographic campaign. Phrases like "Rare but not invisible," "Every story counts," and "Love is not rare" illuminated the faces of our employees, conveying a message of unity and solidarity. Each projected word represented a tangible commitment to support those living with rare diseases and to promote research and access to treatment. Employees demonstrated their commitment to the rare disease cause, offering smiling faces and supportive gestures.

Dompé's commitment extends beyond Rare Disease Day, continuing throughout the year in pursuing the mission of improving people's lives through innovation and scientific research.