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The Rarest Ones

“To be rare like me is to be ignored”

“The Rarest Ones” is a video developed by the Italian biopharmaceutical company Dompé for the #ICareAboutRare campaign, under the patronage of the Italian Federation for Rare Diseases, UNIAMO F.I.M.R. Onlus, on the occasion of the World Rare Disease Day.

Tommaso Galluppi, a 22-year-old with a rare disease, is the official ambassador of a video with an extraordinary cinematographic power, that describe a surprising parallelism: the story of people and animals with no other choice but to live as “rarities”.

Imagine a wolf, a seal, a hawk, an eagle, a penguin, a panda or a polar bear: all species at risk of extinction. It is something that attracts our attention and generates often conflicting emotions, ranging from tenderness to indignation.

Now imagine another condition that may be considered closer to home: the image of a patient affected by one of the so-called rare diseases. These are conditions that frequently receive little attention from the media and are still little known by the general public. More than 7,000 rare diseases have so far been diagnosed, of which 80% have a genetic origin and 75% occur during childhood. It is estimated that in Europe, 6-8% of the population is affected by a rare disease, i.e. about 24-36 million people1, while in the US it is estimated that people with a rare disease are about 25 million2: a still largely “hidden world”.

Tommaso brings to the screen an evocative analogy between two worlds, almost as if the animals have become “endorsers” in a sort of virtuous relay. A succession of extraordinarily cinematographic images, sounds and settings are brought together in the figure of Tommaso and the claim that “To be rare like me is to be ignored”. A message that is intended to shake our consciences and invite us to reflect, a means of opening of our eyes.

Created by the agency Saatchi & Saatchi, directed by Roberto Saku Cinardi and produced by Al One, the video – shot in the highly attractive scenery of Lazio, Abruzzo and the Canary Islands – reflects Dompé commitment to remaining in the forefront of the research for innovative therapeutic solutions for rare diseases.

“The Rarest Ones” video, which is accompanied by the hashtag #ICareAboutRare so that it can be shared on the web and social networks, can be watched on Dompé YouTube channel together with other special and backstage content associated with the campaign.

Source: UNIAMO Federazione Italiana Malattie Rare Onlus, 2015